Author Topic: My buddy Alex helped me make some pizza tonight!  (Read 327 times)

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Offline Qarl

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My buddy Alex helped me make some pizza tonight!
« on: December 06, 2014, 10:11:42 PM »
I've known Alex since the days he and my son, Hunter, were newborns in the NICU.  Alex has cranialsynostosis, a genetic condition that causes the natural expansion joints in the skull to fuse shut, preventing the brain from growing and expanding.  Alex has had 9 surgeries on his head since birth.

Alex is now 14 and is a remarkable young man.   Tonight he and I made pizza together.  He did a great job!

I forgot to take a picture of it up close, but it had fresh tomatoes, basil, pepperoni, shiitake, goat cheese, buffalo mozzarella, and provalone cheese.  It was delicious an he did a great job making it with me!

« Last Edit: December 06, 2014, 10:24:19 PM by Qarl »


Offline waltertore

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Re: My buddy Alex helped me make some pizza tonight!
« Reply #1 on: December 06, 2014, 10:22:56 PM »
This made my day.   Thanks for sharing it.  Walter

Offline Qarl

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Re: My buddy Alex helped me make some pizza tonight!
« Reply #2 on: December 06, 2014, 10:24:56 PM »
Alex visiting my son, Hunter.

Offline Qarl

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Re: My buddy Alex helped me make some pizza tonight!
« Reply #3 on: December 06, 2014, 10:25:43 PM »
This made my day.   Thanks for sharing it.  Walter

Mine too, Walter!  :)

Offline waltertore

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Re: My buddy Alex helped me make some pizza tonight!
« Reply #4 on: December 06, 2014, 10:39:53 PM »
Mine too, Walter!  :)

Qarl:  Your post/photos helped calm my doubts about opening my own pizzeria and employing/training people with disabilities.  It helped me realize I have to do this project plain and simple and the universe will guide me to success.  For me success means seeing people have meaning in their lives.  Tell your son hi for me.  Walter 
« Last Edit: December 06, 2014, 10:42:57 PM by waltertore »

Offline Jackitup

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Re: My buddy Alex helped me make some pizza tonight!
« Reply #5 on: December 06, 2014, 10:58:41 PM »
Alex visiting my son, Hunter.

AWESOME Qarl!! I see you've been around plenty of my kind then (I'm an RT). How do you like your LTV? Many are going with the Trilogy line now. WAY better internal battery and more versatile settings and modes, have your home care RT go over it with you if interested. As you may know I work at Children's here in Mpls and have taken care of 100's of young ones with these syndromes and such. When I start feeling crappy about my load, I go to work and get over it real quick. What most of these kids go thru in a day would break the average person that never see a burden like theirs in a lifetime. GREAT pic!! I can see both are well cared for in just a quick pic, great job to you and yours!

jon
Save A Cow, Eat A Vegan....Totally Organic And Hormone Free!!

Offline Qarl

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Re: My buddy Alex helped me make some pizza tonight!
« Reply #6 on: December 06, 2014, 11:14:27 PM »
The vent has been fine. I think we are on our second unit. We are only traveling when going to a doctor's appointment.  Hunter can also sprint on his own. He sprints for maybe 1-2 hours per day to keep his lung strength up. 

Hunter's biggest respiratory issue is caused by severe scoliosis as a result of his neurologic damage and CP.  Because of this, one of his lungs his compromised.  The vent allows him to not work so hard to breathe.

He's been vented now about 5 years.  Trached since he was 18 months.

« Last Edit: December 07, 2014, 12:10:43 AM by Qarl »

Offline CaptBob

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Re: My buddy Alex helped me make some pizza tonight!
« Reply #7 on: December 07, 2014, 01:50:35 AM »
Outstanding Qarl!!!  This puts it all in perpective..........what a great post!!! All is well and good!!!
Bob

Offline patnx2

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Re: My buddy Alex helped me make some pizza tonight!
« Reply #8 on: December 07, 2014, 01:56:01 AM »
thanks for sharing. patrick
Patrick

Offline TXCraig1

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Re: My buddy Alex helped me make some pizza tonight!
« Reply #9 on: December 07, 2014, 09:29:58 AM »
Outstanding Qarl!!!  This puts it all in perpective..........what a great post!!! All is well and good!!!

 ^^^  Very moving. Thank you for posting.
Pizza is not bread.


Offline mkevenson

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Re: My buddy Alex helped me make some pizza tonight!
« Reply #10 on: December 07, 2014, 12:57:49 PM »
Beautiful kitchen and message. Continued success to all.

Mark
"Gettin' better all the time" Beatles